Every health condition is a serious health condition. People tend to tell you that things could be worse, that you could have a more serious disease, but no one knows what you’re going through. Having a chronic illness means that you have to deal with it for the rest of your life.
Find out a few of the things that make our columnist Robin Dix’s life easier with fibromyalgia.
Fibromyalgia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.
They keep saying if u loose weight it will all go away ,well i lost weight ,And i still have Fibromyagia so they are just making me feel krazy
I have been told I am not really sick, that I can change it if I want to. That I am not trying hard enough to. I have been told by now with all the doctors I have seen I should be better. I get the loose weight comment too, but I was normal weight when I started to get it. I am in treatment for Lyme disease by my primary doesn’t believe that I should be. I have to try something. I have arthritis too but everyone says I am too young to have it so they don’t believe me. I am so sick of all of it. No one gets it. I miss a lot of events because I don’t feel well. I don’t have a lot of friends here and I am kind of isolated. I just got divorced because of the illness and the things I can not do and that he doesn’t believe me when I say I am in pain or too tired. I have several illnesses. I have chronic pain from other issues. I wish people would understand and not judge people with fibromyalgia. I heard on tv the other night that people who have fibro and ADHD decide they have it and made it sound like its fake. My son has ADHD. I wish to find a cure or a better life. I want to eat better but going gluten free is hard. Well, I am going to learn Reiki and hope it helps. Please keep supporting us.
Thank you for the heartfelt comment Renee. You are absolutely right… people simply do not understand if they do not have a chronic pain. One of the worst things to hear is “You are not trying hard enough.” I hope you are able to find some relief soon through different activities. Diet is a major component, but like you said… it can be difficult! 🙂
I would not want anyone to understand the way myself and many here do have difficulties-all I truly want/ need is acceptance rather than using my illness as a reason to be excluded.
O believe I have developed an attitude and just take things too personally-anyone else understand how this feels??