Make Plans, Cancel Plans, Repeat

Make Plans, Cancel Plans, Repeat
One of the most challenging aspects of life with fibromyalgia is the speed with which my health can deteriorate. I can awaken in the morning feeling capable of going somewhere, finishing a long overdue project, or inviting guests to my home. But by the time invitations have been issued or preparations made, I often don't feel as well as I did earlier. When the actual event occurs, I wish I'd never planned it. (I'm visualizing many fibro readers nodding their heads in acknowledgment.) When I think about it, this is the story of a fibromyalgia life: feel fine, make plans, feel bad, cancel plans, repeat. Adding to the challenge (not only for me, but also for any others involved) is that the time between planning and canceling can be several months (as in the lead time for purchasing concert tickets or making travel plans) or several hours (as in inviting someone for dinner in the morning and canceling that afternoon) or just minutes (the time between telling a friend it’s OK to come pick me up and the time she pulls into my driveway).  Does this happen every time? Of course not! Just often enough that the thought of making a plan of any kind is downright stressful. And that in itself can bring on the very symptoms that prevent me from participating in the things I want to do. The decision becomes how badly do I want to do this thing? Badly enough to suffer the consequences if and when I need to cancel? Those consequences are many and varied. Often they involve money. In the case of airline travel, it could be
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  1. Kristi Jogis says:

    Yes, Vicki I totally agree! Unfortunately certain family members have little interest in learning about my illness. Disappointing to say the least!

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