9 Things You Shouldn’t Say to Someone Living With a Chronic Illness

chronic8fib Everyone has an opinion and everyone knows someone who is friends with someone that has a certain disease--and that might be true. But not everyone is the same, and the exact same health condition can affect different people in very different ways. So while that friend of a friend may suffer from PH and has some very bad days, that does not mean you will go through the exact same thing that he/she is going through. Could changing to a gluten-free diet help with your fibromyalgia symptoms? 
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4 comments

  1. Donna Welcher says:

    They keep saying if u loose weight it will all go away ,well i lost weight ,And i still have Fibromyagia so they are just making me feel krazy

  2. Renee W says:

    I have been told I am not really sick, that I can change it if I want to. That I am not trying hard enough to. I have been told by now with all the doctors I have seen I should be better. I get the loose weight comment too, but I was normal weight when I started to get it. I am in treatment for Lyme disease by my primary doesn’t believe that I should be. I have to try something. I have arthritis too but everyone says I am too young to have it so they don’t believe me. I am so sick of all of it. No one gets it. I miss a lot of events because I don’t feel well. I don’t have a lot of friends here and I am kind of isolated. I just got divorced because of the illness and the things I can not do and that he doesn’t believe me when I say I am in pain or too tired. I have several illnesses. I have chronic pain from other issues. I wish people would understand and not judge people with fibromyalgia. I heard on tv the other night that people who have fibro and ADHD decide they have it and made it sound like its fake. My son has ADHD. I wish to find a cure or a better life. I want to eat better but going gluten free is hard. Well, I am going to learn Reiki and hope it helps. Please keep supporting us.

    • Tim Bossie says:

      Thank you for the heartfelt comment Renee. You are absolutely right… people simply do not understand if they do not have a chronic pain. One of the worst things to hear is “You are not trying hard enough.” I hope you are able to find some relief soon through different activities. Diet is a major component, but like you said… it can be difficult! 🙂

  3. Em says:

    I would not want anyone to understand the way myself and many here do have difficulties-all I truly want/ need is acceptance rather than using my illness as a reason to be excluded.
    O believe I have developed an attitude and just take things too personally-anyone else understand how this feels??

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