Everyone has an opinion and everyone knows someone who is friends with someone that has a certain disease–and that might be true. But not everyone is the same, and the exact same health condition can affect different people in very different ways. So while that friend of a friend may suffer from PH and has some very bad days, that does not mean you will go through the exact same thing that he/she is going through.
Could changing to a gluten-free diet help with your fibromyalgia symptoms?
They keep saying if u loose weight it will all go away ,well i lost weight ,And i still have Fibromyagia so they are just making me feel krazy
I have been told I am not really sick, that I can change it if I want to. That I am not trying hard enough to. I have been told by now with all the doctors I have seen I should be better. I get the loose weight comment too, but I was normal weight when I started to get it. I am in treatment for Lyme disease by my primary doesn’t believe that I should be. I have to try something. I have arthritis too but everyone says I am too young to have it so they don’t believe me. I am so sick of all of it. No one gets it. I miss a lot of events because I don’t feel well. I don’t have a lot of friends here and I am kind of isolated. I just got divorced because of the illness and the things I can not do and that he doesn’t believe me when I say I am in pain or too tired. I have several illnesses. I have chronic pain from other issues. I wish people would understand and not judge people with fibromyalgia. I heard on tv the other night that people who have fibro and ADHD decide they have it and made it sound like its fake. My son has ADHD. I wish to find a cure or a better life. I want to eat better but going gluten free is hard. Well, I am going to learn Reiki and hope it helps. Please keep supporting us.
Thank you for the heartfelt comment Renee. You are absolutely right… people simply do not understand if they do not have a chronic pain. One of the worst things to hear is “You are not trying hard enough.” I hope you are able to find some relief soon through different activities. Diet is a major component, but like you said… it can be difficult! 🙂
I would not want anyone to understand the way myself and many here do have difficulties-all I truly want/ need is acceptance rather than using my illness as a reason to be excluded.
O believe I have developed an attitude and just take things too personally-anyone else understand how this feels??