Those of us with fibromyalgia have different degrees of symptoms, more or less support from friends and family, different living situations, and various job arrangements — some work at home while others leave home and go out to work. We all need to find ways that help us cope on a daily basis, especially since our symptoms can be so erratic.
I would like to share my top coping tips and would love to hear yours.
My fatigue is truly debilitating at times, so I spend a lot of time in bed. I keep a small table next to my bed where I keep the things I need daily: my meds, tissues, water, cellphone, tablet, TV remote, lip balm, a notepad, and a pen.
I make an effort to go for a 10-minute walk every day to help fight my muscle weakness and improve my mood. Because I’m in bed most of the time, I get up throughout the day just to move around. When I go shopping I use a shopping cart to lean on. It gives me more stability moving around the store.
Reading is a passion, but it’s difficult to hold a book, so I have an eReader that contains lots of books and is so much easier for me to hold. I also like books I can listen to by just closing my eyes and getting lost in hearing a book being read to me.
Coping for comfort
I am a stickler for buying clothes that are soft and have no tags. I never wear a bra unless I’m going somewhere important. They cause pain in my already tender ribs. Comfort is everything — and for that reason I wear mostly T-shirts, sweats, and very comfy jammies.
Listening to uplifting music, reading my Bible, and praying daily really help to keep me centered. When I’m too tired to think, I get lost in a TV show or a good movie. It’s important that I accept my limitations and take good care of myself. Part of that for me is knowing the best time of day to do something. For example, I shower late in the afternoon or early evening because it really wipes me out.
I don’t let other people tell me what I should be doing or not doing to get better. I choose not to let negativity in whenever I can. I also do my best to eat healthy foods, but when I’m exhausted and just grab something easy, I don’t feel guilty about it.
What are your top tips for coping?
Note: Fibromyalgia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Fibromyalgia News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to fibromyalgia.