Fibro Quote: Invisible Pain
They just don’t understand what they cannot see. This quote about invisible pain says what you wish you could say, “My pain is invisible, so is the pain you inflict when you don’t believe me.” Share this quote on your social media to get the message to those that need to hear it. With fibromyalgia, the pain is real- even when the symptoms are silent.
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Fantastic, amazing, quote!!! Congratulations to whoever devised this amazing quote! I have sat and cried as I have recently been diagnosed with fibromyalgia after suffering terrible pain in various parts of my body, chronic fatigue, depression, numerous hospital appointments, physio therapists, being told quote…’Oh Mrs Flynn we see from your notes that you suffer from depression’ …with a pityful expression on the doctors faces….quote ‘you see Mrs Flynn people who suffer from depression have a high pain threshold’ ….again that pityful look…….after about what seemed like the one hundreth Doctor saying the same thing after each set of X-rays and tests came back clear……..I wanted to scream I’m damm depressed because of all the damm pain, fatigue etc etc and NOT BEING BELIEVED!!
I have experienced what this quote describes many times. If you don’t look terminally ill people and doctors fail to take your pain concerns seriously. It is deplorable for a physician to tell you “it’s all in your head” because there are not decisive medical tests for fibromyalgia. Nothing has changed since I was first diagnosed over 20 years ago. It is hard to keep fighting and hoping for a cure or at least medication that works without intolerable side effects when this misconception continues. If I broke a bone no one would question my pain.
If you need a test subject, pick me! I’ve suffered from Fibromyalgia my entire life. Looking back from the perspective of a 64-yr-old woman, I can see where I’ve been going around in circles trying to fix so many different symptoms, where the overriding cause has been Fibromyalgia. Unless wearing my Annie Oakley outfit as a 3-yr-old, you could find me in my outfit of choice: panties and shorts. My parents made me start wearing a shirt when I was 5-yrs-old. (See Allodynia). I was overly sensitive to sounds, and smells, and riding in a car always resulted in carsickness. Dysmenorrhea began at puberty (12.5-yrs-old). Here are just a few more examples of my symptoms: recurring sinus infections (8-10 per year) documented since age 13, and accompanied by headaches “of migraine intensity”; inhalant allergies; excessive bleeding, later discovered to be Von Willebrand’s Disease, type 1; clinical depression; severe post-partum depression; fibrocystic breasts (age 27); breast cancer (age 34); hysterectomy due to non-stop bleeding (age 39); etc.
I recently was forced to file for my Social Security benefits because I simply can’t hold down a job anymore. It won’t be enough to live on, but it will have to be. I was divorced at age 34, and was a single Mom to boys ages 6 and 9. They both grew up to be successful adults. They are my greatest accomplishment in life. Do I live with some level of pain every day? You betcha. Am I willing to give up on life? Not a chance. I’m a survivor. When the pain is at its worst, I force myself to look out the window at a bird or a flower or tree, and thank God for the beautiful day. My better days will come again.
Wow. Just wow. Thank you Laurie for that great comment and wonderful encouragement!
Fantastic express of how Fibro people feel and sadly so true and in my view nothing worse then that look of vague disbelieve that is why so many of us sadly learn to Grin and bare it.