I feel like I’m one of the fortunate few who actually gets the recommended seven to eight hours of sleep per night. However, fibromyalgia and chronic fatigue syndrome keep me down for the count most of the day. Because of this, I’m so thankful for my adjustable bed, a beautiful sunny bedroom, and a husband who takes really good care of me. There’s so much that I love about my life — yet so much that I find difficult and frustrating.
I usually lay in bed when I first wake up and catch up on social media, play a few games, pray, and check my calendar for the day. If I’m scheduled for an appointment, I try to make sure I’m well rested beforehand. I know that when I return from my appointment, I will most likely have to crash for a few hours. As such, I have to plan rest into my day.
Once I get out of bed I usually get breakfast, make a cup of tea and sit in my recliner and read for an hour or so. I can’t sit too long for extended periods, as my tailbone and my sciatic nerve start to really hurt. Otherwise, I’d be content to read for hours. I usually sit and read a few times each day.
I try to shower every other day, but if energy doesn’t permit, then I resort to wipes and dry shampoo. Showering completely wipes me out, which seems to be a common complaint among people with fibromyalgia. I never take baths because I find it too difficult to get in and out of the bathtub.
I set a timer for 30 minutes at various times throughout the day. This allows me to spend a concentrated amount of time working on my columns and my books, as I can only work for 30 minutes at a time. When I’m not writing or reading, I tend to binge-watch shows on Netflix, Hulu or Amazon Prime.
Besides my writing, I also have an affiliate store on Amazon. I sell nutrition products for a network marketing company that I personally have used for several years. It’s important to me to bring in some residual income.
My husband is really great at making a few dishes that I can just reheat when he’s at work. Two of my favorites are bison vegetable soup, and rice and stir fry veggies with raw cashews. I also enjoy a sandwich on whole grain bread with a few chips made with avocado oil. I like simple and easy.
As a soon-to-be lady of 62, life is precious to me. I truly enjoy being there for others suffering with fibromyalgia and offering support and encouragement. My faith in God is what keeps me grounded and brings peace to the chaos that has become my life.
I thought you would enjoy a small glimpse into my life. You are all precious to me. ?
Note: Fibromyalgia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Fibromyalgia News Today or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to fibromyalgia.