May 12 is Fibromyalgia Awareness Day, which means all around the world, patients, caregivers and the organizations who support them will be trying to bring attention to this misunderstood disease.
If you’re wondering what can you do to help, newlifeoutlook has quite a few ideas.
MORE: Eight celebrities living with fibromyalgia.
There are many ways that you can help to raise the profile of fibromyalgia including:
- Getting on social media to share facts, stats, figures and life stories about fibromyalgia.
- Getting involved in a local fibromyalgia awareness event.
- Hosting your own fibromyalgia awareness event to raise funds for research.
- Donating to a fibromyalgia charity or non-profit organization.
- Hosting a Facebook page for locals with fibromyalgia.
- Joining or hosting a local support group.
- Contacting your senator or congressman to talk about extra funding for fibromyalgia research and treatment.
- Becoming an advocate for fibromyalgia and speaking out to the medical world and the media.
- Printing out support posters and putting them up at your place of work/school/college
- Wearing a fibromyalgia purple ribbon and talking to people about the disease when they ask why you’re wearing it.
- Creating your own YouTube video to explain what it’s like to live with fibromyalgia.
- Selling fibromyalgia wristbands to friends, neighbors, and colleagues.
MORE: Five types of exercise that can relieve fibro pain.
Fibromyalgia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.
Great list! Let’s all get busy!
Absolutely Denise! It is still quite sad that people do not understand this disease that affects so many.
I suffer from fibromyalgia and RA and it’s in advance stages and it’s so awful and painful, I wish more people could understand exactly what and how it effects a person.. 😥
Even though I have Fibromyalgia all of this what it appears as attention seeking does not make sense to me. It is not even accepted as correct spelling. I am no more special than any other person. Mayhap I have an attitude at this moment.
Erin, I think u are missing the point. To raise aweness is so this little understood, mis diagnosed, ignored and grueling disease can get funding for research, not for “attention”. I tell no one I have fibro unless it is to another fibro person, however, I run a support group where through Awareness people who think they are crazy have a place to be helped, understood and accepted. So the “attention” is NOT for you but for others to get help and to shout out, this disease needs research and a cure because it sucks!
Thanks! You can also take the #hurtswithfibromyalgia challenge!
Em, your previous posts have bemoaned the fact that people don’t understand or believe you have this horrible illness. Anything we can do to promote knowledge and understanding of it will help educate those who do not believe or understand. And you are special! (Whether you have fibromyalgia or not!)