What Does a Chronically Ill Person Do All Day?


Many people with chronic diseases have what’s called an “invisible illness.” This means that although they’re very sick, they don’t have any visible signs of illness so many people assume that they’re not really sick at all.

MORE: One vlogger discusses three symptoms of fibromyalgia nobody talks about. 

This is a constant source of frustration for many chronic disease sufferers. They’re always trying to get friends, family and co-workers to understand that just because they don’t use a wheelchair or look like they have a disability, doesn’t mean they’re not suffering from symptoms such as constant chronic pain and debilitating fatigue.

Kari Lingren wrote an article for The Mighty where she answers in great detail one of the questions she regularly gets asked by those who don’t (or can’t) understand what it’s like to live with a chronic illness: “What do you do all day?”

She explains how difficult is it for people like her to just get out of bed in the morning; how she needs a couple of hours to adjust from being asleep to being awake; to summon the strength needed to go and fix herself some breakfast. And her day doesn’t really get much better. Everything she needs to do takes up so much of her limited energy supply that it takes her a long time to recover from even the simplest of tasks. The biggest thing she can do all day is concentrate on resting so her body can begin to heal itself to start over again the next day.

Read Kari’s article “My Response to “What Do You Do All Day?” as a Chronically Ill Woman.”

MORE: Read our columnist Robin Dix’s take on having a pet when you have fibromyalgia. 

Fibromyalgia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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  1. John Egan says:

    Greetings fellow sufferers
    Yes you guessed right, I too have Fybromyalgia with overlapping CFS. Let me just say my greatest challenge is not the energy sapping fatigue, but the mind numbing brain fog that goes with my illness. If I could somehow remove this one major symptom from the list, It would go a long way to improving my daily life.
    Forever Hopeful
    John Egan

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