Understand symptoms may come and go.
People with invisible illnesses often suffer from extreme fatigue and chronic pain. Sometimes just getting through the day is difficult, leaving them with no desire to go out socializing after work. On the flip side, don’t assume that because they have an illness that they won’t want to go out–they might be having a good day and are feeling great. Be inclusive but respect the person’s decision, only they will know whether they are up for the activity.
When one has an invisible illness one becomes invisible. A horrific fact and feeling.
Unfortunately true. 🙁
Yes, but still tolerable. Thanks Tim 🙂
Oh, Em, this is SOOOO true. Have you noticed how even in a group, if people know you have an illness, nobody asks what you’ve been up to..but they will ask everyone else. Yup. Invisible. Been there, done that, still doing it. Hope you have a good life regardless 🙂
I don’t feel invisible but I do feel misunderstood at times
Misunderstood. Yes… very much. 🙁
Um…while this is all well and good…you have to have people who are willing and able to stick around for the ‘good’ days after you’ve had months of bad ones. They finally just stop asking.
Thank you Sandra. I do still have a good life. I believe people react as they do out of ignorance and their own insecurities. They do cease asking or coming around. They don’t know what to do or say and when I am present I can feel their uneasiness. The way it is-can;t change it, can’t fix it.
Hurting a lot today so will sip my ginger tea and snuggle up w/ my rice bag. weather change coming-a living, breathing barometer. Doppler has nothing on this old timer.
I too hope you have a good enough life. Hoping to be able to work on a watercolor once I get warm on the inside. Currently the only thing not hurting are my earlobes. 🙂
Blessings, Em
I understand everything you’re all saying. It’s pretty isolating. Thankful for people like you that “get it.”