Fibromyalgia Patients Get Help With New Self-Report Measure of Fatigue

Fibromyalgia Patients Get Help With New Self-Report Measure of Fatigue
Researchers have created a new self-report measure of fatigue for fibromyalgia patients, the Patient-Reported Outcomes Measurement Information System (PROMIS) Fatigue Profile. The research paper, “The PROMIS Fatigue Profile: a self-report measure of fatigue for use in fibromyalgia,” was published in Quality of Life Research. Fibromyalgia is a debilitating and chronic condition associated with muscular or musculoskeletal pain, fatigue and mobility issues, with symptoms varying from patient to patient. According to the American Fibromyalgia Syndrome Association Inc, 3 to 5 percent of the general population is affected by this condition. Although pain is often considered the hallmark symptom of FM, fatigue is one of the most common and incapacitating FM symptoms. It is described by patients as profound and overwhelming, characterized by a severe and constant exhaustion that it is not relieved by rest or sleep. Because FM is characterized by multiple symptoms, it is difficult and time-consuming for patients to rigorously assess all symptom domains. It is therefore important to develop accurate and patient-friendly measurements of the health-related quality of life (HRQOL) domains relevant to individuals with fibromyalgia. When the Patient Reported Outcomes Measurement Information System (PROMIS) was created, it was intended to be an efficient and accessible HRQOL measurement, containing a 95-item bank to evaluate fatigue in adults, such as frequency, duration, intensity, and its impact on physical, mental, and social activities. However, unlike the PROMIS tools to meas
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