Fibromyalgia Patients Are Among Least Satisfied with Healthcare, Poll Finds

Fibromyalgia Patients Are Among Least Satisfied with Healthcare, Poll Finds
Patients with fibromyalgia, post-traumatic stress disorder (PTSD), and major depressive disorder (MDD) are the least satisfied with their healthcare, while people with ALS (amyotrophic lateral sclerosis), multiple sclerosis (MS), and Parkinson’s disease are the most satisfied, according to results from a poll. The six-question survey included 2,559 participants. It was conducted by the website PatientsLikeMe, a personalized health network that provides real-world disease information, helps outline new options for treatments, connects with other patients, and takes action to improve their outcomes. A key finding was that only 47% of patients with fibromyalgia and PTSD, and 53% of patients with MDD, said their healthcare provider had fully explained the treatment options available to them. Compare this to the 63% of patients with ALS, MS, and Parkinson’s disease. Also, only 40% of fibromyalgia patients responded that they believe they were receiving the best possible healthcare for their disease. This is similar to patients with PTSD (49%) and MDD (45%). But these numbers are much lower compared to those with ALS (66%), MS (61%), and Parkinson’s disease (57%). Interestingly, 56% of patients with fibromyalgia and MDD, and 53% of PTSD patients choose to stay with their healthcare provider, despite believing they are not receiving the best care or most effective treatment. But only 31% of ALS patients, and 36% of MS and Parkinson’s patients stay with their provider if they believe they are not receiving the best care. In another study, researchers recruited a group of members from PatientsLikeMe — patients from a community clinic in Baltimore, as well as
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