6 Things You Should Say to Someone With Fibromyalgia

Finding out a friend, family member or co-worker has fibromyalgia is complicated, however, despite our best intentions, we can often accidentally say something that may be offensive or hurtful. What the person really wants to hear is that you're there for them and thinking of them. MORE: 10 tips to help you through cold and flu season With that in mind, we've compiled a list of things you should say to a person who has been diagnosed with fibromyalgia: "I'll do that for you!" The "that" could be anything that you know the person would find helpful, from fetching groceries to giving them a ride to the hospital to cooking them dinner. Actions speak louder than words and even just one act of kindness can help them out immensely, especially if they're feeling ill following a treatment session. "What are you thinking about today?" It can be difficult to judge what's going through the mind of someone who's living with fibromyalgia. They'll have good days and bad days, so some days you can be their cheerleader, and on others their shoulder to cry on. Asking them what they're thinking about opens the lines of communication, and could spark a conversation about upcoming treatment, how tired they are or maybe nothing to do with their illness, if they want to get their mind off the subject. "What don't you want to talk about?" Your friend or loved one may be completely open about all aspects of their illness, or there could be some areas that they really don't want to talk about. Respect this by asking what's off limits. This way you'll know that you're not overstepping. MORE: Four facts about fibromyalgia you might find interesting "Thinking about you!" This can either be said verbally or via a text message, email or Facebook message. It's short and
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  1. Karen Stanley says:

    The list of things to say is great, except for the last one. Please do not hug, touch, or squeeze without checking to see how I am feeling and whether that well meant caress is wanted. Sometimes the most well meaning and gentle of hugs, pats, and squeezes can be very painful. Resulting in at least a flinch. I find myself trying so hard to be nice about it, since I know it is well intentioned. Please, just don’t put us in the spot of having to try not to offend you,
    or maybe even just toughing it out and hiding how much that hurt.

  2. Mar says:

    Ya…I’ve got a husband who “says nothing at all” and that infuriates me. Doesn’t acknowledge that I have said something about my pain or fatigue. Just acknowledge that I said something. His excuse…”I don’t know what to say. And when I do say something, you get mad.”
    i told him to google what to say to someone with a chronic illness…

    • Connie Wilson says:

      I have the same problem with my significant other. He does not really want to know how I am feeling. He does not know how to cope with his feelings and refuses to get help. It just brings me down, so I try to ignore it to the best of my ability. I have kept my Fibro secret for years from others primarily because they cannot comprehend what this disease is.

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