The fibromyalgia community is fabulous and full of strong and brave fibro warriors. You are not alone, even though I know how lonely having fibromyalgia can be for all of us, of one degree or another. However, I know it doesn’t always feel like we are not alone – I struggle with that, too.
One thing I initiated in my chronic illness group is “pain pals.” This is someone you can message, call, send a card to, etc. We could all use a pain pal, wouldn’t you agree?
It seems at times that our life consists of going to the doctor or other necessary appointments. I certainly would much prefer to meet a friend for coffee or go shopping at the mall. I know you probably would, too. Social isolation totally sucks!
A fibromyalgia group would be a great place to start. If there are no fibromyalgia support groups near you, perhaps you could start one. Any public place, such a library, is a good way to meet. If you don’t drive, you could invite a friend along who can drive you. It would meet a social need for you and help your friend to better understand what you deal with…every single day.
If you are a woman, I would love to invite you to check out my private Facebook group called, “In Spite of My Illness.” It’s a supportive group full of kind and amazing ladies who are also struggling with chronic illness. (I know there are also at least three Facebook groups just for guys as well.)
I truly feel for those of you who live alone. The loneliness must feel unbearable at times. I wish I could hug you all! The sad fact is that if we don’t take steps to be part of some group, people are not likely to just reach out to us, as much as we would welcome that. Our healthy friends and family are so busy with their lives that they don’t often take the time to think about what our lives must be like. We need to be proactive.
So, I encourage you to come up with a plan to connect with others, both online and in real life. Connecting with others is a great reminder that you are not alone, and don’t have to be alone.
Note: Fibromyalgia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Fibromyalgia News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to fibromyalgia.