Whether you are newly diagnosed or have had fibromyalgia for a while, you should have a list of resources that can be helpful to you. I spent some time compiling some as well as creating some. If you know anyone who could benefit from this list, please feel free to share it.
**NATIONAL AND INTERNATIONAL FIBROMYALGIA ASSOCIATIONS**:
Fibromyalgia
https://fibroandpain.org/community/international-fm-community
http://www.forgrace.org/resources/pain-organizations/
http://www.abilitymaine.org/resource/guides/fibro.html
https://theacpa.org/condition/fibromyalgia
There are many **FACEBOOK PAGES,** but I’ll list the ones I’ve found to be the most helpful:
https://www.facebook.com/fmaware/
https://www.facebook.com/FibroColors/
https://www.facebook.com/DearFibromyalgiaSupportGroup/
https://www.facebook.com/FibroEA/
https://www.facebook.com/FIBROMYALGIA-SUPPORT-AUSTRALIA-364885047318/
https://www.facebook.com/Fibromyalgia-News-Today-1419267131699107/
https://www.facebook.com/fibromyalgia.uk/
https://www.facebook.com/NFMCPA/
https://www.facebook.com/FMSNI/
https://www.facebook.com/FibromyalgiaDisability/
https://www.facebook.com/FibroAwarenessIreland/
**FACEBOOK GROUPS** that you may be interested in joining: There are many more than I could list here.
http://www.inspiteofmyillness.info
https://www.facebook.com/groups/687563758062860/
https://www.facebook.com/groups/582887195175812/
https://www.facebook.com/groups/FibromyalgiaImages/
https://www.facebook.com/groups/UKFibromyalgiaPrivate/
https://www.facebook.com/groups/307837769298419/
https://www.facebook.com/groups/fmcpsurvivorsgroup/
**The 14 BEST fibromyalgia BLOGS of 2016:**
http://www.healthline.com/health/fibromyalgia/best-blogs-of-the-year
**Help in finding a RHEUMATOLOGIST in the U.S. and other countries here:**
http://www.rheumatology.org/Directories/Find-a-Rheumatologist
If you have resources you have found helpful, please feel free to share them with me at: [email protected], as well as in the comments.
We are all on this journey together. None of us need to travel alone. Groups and resources keep us connected and allow us not only to survive, but thrive. We all do better in community. You are not alone.
Note: Fibromyalgia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Fibromyalgia News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to fibromyalgia.
I have had pain all over my body sometimes I have good days.. I am still going through test at hospital I have had to give up work.. my c r p is 31..I have appointment with rehumoid arthritis at hospital in December.. I am on co codamol and tramadol gabapentin.
I find it hard to get out of bed I am stiff and pain when I get up after sitting down I find it hard to walk to far..
We are so sorry for the way that you struggle with the pain. We hope that you are able to get some answers at your next appointment. Have any of these resources been of help to you
Thank u so much for doing that as it will help so much.
You’re welcome. 🙂
I have a FB page called, “Kim and Karen’s Fibromyalgia Talk. I just started it and am looking for information to post that would be helpful to others. Would it be alright if I posted some of the ones you listed on there? Also looking for new people to join. It is a closed group because I wanted people to feel safe when they post. Any ideas of how I can boost the membership?
Karen, feel free to post the link to this column on your group page, please don’t just copy the links. Just share the link to your group page on your wall, maybe ask some friends if you can post the link on their wall in case some of their friends would like to join
Ok, I will do that and thanks for sharing.
Thank you for posting additional sites. You didn’t have to do that, but it does help and shows you care!
Denise, it is my honor to serve all of you ????
Hi Robin, I wanted to mention that the National Fibromyalgia Association’s website is not listed amongst your websites. http://www.fmaware.org. We are listed by Facebook page, so thank you for that. We have spent nearly 20 years working hard to add value to the FM community with awareness, patient advocacy, information, community, research and more. I hope you will consider adding us to your resource page.
Elizabeth, thank you for bringing that to my attention. I will add it ????
Hi I suffer with FIBROMYALGIA I run a Facebook group called FIBROMYALGIA NITE OWLS and its worldwide was wondering how I get on the list of groups that help x