Online Fibromyalgia Resources for Your Journey

Robin Dixby Robin Dix

In Through the Fog - A Column by Robin Dix.

Online Fibromyalgia Resources for Your Journey

Through the Fog

Whether you are newly diagnosed or have had fibromyalgia for a while, you should have a list of resources that can be helpful to you. I spent some time compiling some as well as creating some. If you know anyone who could benefit from this list, please feel free to share it.

**NATIONAL AND INTERNATIONAL FIBROMYALGIA ASSOCIATIONS**:

http://www.fmcpaware.org

http://www.fmauk.org

http://www.nfra.net

http://www.enfa-europe.eu

Fibromyalgia

http://www.givepainavoice.org

https://fibroandpain.org/community/international-fm-community

http://www.forgrace.org/resources/pain-organizations/

http://www.fibrohaven.com

http://www.abilitymaine.org/resource/guides/fibro.html

https://theacpa.org/condition/fibromyalgia

FMA New Page 

There are many **FACEBOOK PAGES,** but I’ll list the ones I’ve found to be the most helpful:

https://www.facebook.com/fmaware/

https://www.facebook.com/FibroColors/

https://www.facebook.com/DearFibromyalgiaSupportGroup/

https://www.facebook.com/FibroEA/

https://www.facebook.com/FIBROMYALGIA-SUPPORT-AUSTRALIA-364885047318/

https://www.facebook.com/Fibromyalgia-News-Today-1419267131699107/

https://www.facebook.com/fibromyalgia.uk/

https://www.facebook.com/NFMCPA/

https://www.facebook.com/FMSNI/

https://www.facebook.com/FibromyalgiaDisability/

https://www.facebook.com/FibroAwarenessIreland/

 

**FACEBOOK GROUPS** that you may be interested in joining: There are many more than I could list here.
http://www.inspiteofmyillness.info

https://www.facebook.com/groups/687563758062860/

https://www.facebook.com/groups/582887195175812/

https://www.facebook.com/groups/FibromyalgiaImages/

https://www.facebook.com/groups/UKFibromyalgiaPrivate/
https://www.facebook.com/groups/307837769298419/

https://www.facebook.com/groups/fmcpsurvivorsgroup/

 

**The 14 BEST fibromyalgia BLOGS of 2016:**
http://www.healthline.com/health/fibromyalgia/best-blogs-of-the-year
**Help in finding a RHEUMATOLOGIST in the U.S. and other countries here:**
http://www.rheumatology.org/Directories/Find-a-Rheumatologist

If you have resources you have found helpful, please feel free to share them with me at: [email protected], as well as in the comments.

We are all on this journey together. None of us need to travel alone. Groups and resources keep us connected and allow us not only to survive, but thrive. We all do better in community. You are not alone.

Note: Fibromyalgia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Fibromyalgia News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to fibromyalgia.

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12 comments

  1. Sandra thorn says:

    I have had pain all over my body sometimes I have good days.. I am still going through test at hospital I have had to give up work.. my c r p is 31..I have appointment with rehumoid arthritis at hospital in December.. I am on co codamol and tramadol gabapentin.
    I find it hard to get out of bed I am stiff and pain when I get up after sitting down I find it hard to walk to far..

    • Tim Bossie says:

      We are so sorry for the way that you struggle with the pain. We hope that you are able to get some answers at your next appointment. Have any of these resources been of help to you

  3. karen anderson says:

    I have a FB page called, “Kim and Karen’s Fibromyalgia Talk. I just started it and am looking for information to post that would be helpful to others. Would it be alright if I posted some of the ones you listed on there? Also looking for new people to join. It is a closed group because I wanted people to feel safe when they post. Any ideas of how I can boost the membership?

  5. Elizabeth Mesic says:

    Hi Robin, I wanted to mention that the National Fibromyalgia Association’s website is not listed amongst your websites. http://www.fmaware.org. We are listed by Facebook page, so thank you for that. We have spent nearly 20 years working hard to add value to the FM community with awareness, patient advocacy, information, community, research and more. I hope you will consider adding us to your resource page.

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