This is an open letter to our friends (fair-weather perhaps) and our family members who don't understand (be honest, some of you don't even try). This is not to bash anyone or make you feel guilty, we just want to share our heart with you in hopes of gaining greater understanding and support. We understand that your life is busy, ours used to be too. It can be very difficult knowing what to say or what to do when your friend or family member's health situation is chronic and not going away. Don't get tripped up on that though, we still want you in our lives. We need you to keep us in the loop of your life, it really helps us when we can focus on others. So, what would really bless us you might ask? Simple things. Spend 30 minutes with us over a cup of coffee or tea. Call us once a week just to catch up on each other's lives. Send us a card or a book you think we might enjoy. Pray for us. Bring a meal or fresh-baked cookies. Simple things. Please don't forget about us and drop out of our lives. It makes a complicated situation more painful and lonely. It's so hard feeling socially isolated! When you invite us somewhere or include us in your plans, we may have to cancel at the last-minute. Don't take it personally, it just may mean our energy or pain levels won't allow us to follow through. Just like we wouldn't take it personally if you had to bow out because you had the flu or a migraine headache.